Chapter 13

Well I realize that I have been slacking with writing things down this past month.  It's amazing how fast the holiday season rushes by us.  One minute you're wrapping presents for under the tree, and the next you're constantly correcting the year on forms or checks that you write.  It always takes me a while to get used to writing the new year (ex. 2014 to 2015) Seems like at least until March white out is a constant useful tool in my home.  It's really incredible when you think about it how fast time really does fly.  The other day Ellie, my 10 year old, said, "you know Mom in 5 years I'll be driving."  I'm not exactly sure why, but that statement hit me like a ton of bricks.  In fact, if I double her time here on earth she will be 20 before I know it.  It makes a whirlwind of emotions stir inside me.  Anyone who knows me knows that I hate it when I am unable to control things.  (I think that this is a little of where my anxiety comes from)  Bottom line.....kids grow up too fast, and they are out of the house and on their own before we even realize what has happened.  We're still wondering what happened to 1st and 2nd grade and their picking out a prom dress!!  Yikes!!

So otherwise than another passing too quickly I feel extremely blessed.  We have a roof over our heads, food on the table, clothes to wear, Jesus in our lives, good friends, basically good health, and nothing but adventure lies ahead for my little family.  I have often wondered if and when a time is right to start dating again.  You know, funny thing, I pray about it (the dating that is) and I just always ask to know when the time is right for me to seek out another man to be in not only my life, but the lives of my girls.   I never really feel an answer to this prayer.  I think mostly because I know that deep inside I am not ready to date.  Despite the loneliness and the wish to have someone to share my ups and downs I think that I really have many trust issues to work through before that time comes for me in my life.  It's funny because my girls have asked for a Dad to have at home.  One who lives with them full time.  Someone who will come to their games, performances, and school activities.  I wish nothing more than to have someone to share with all the ups and downs of life, however, when I know that the main thing I want from a man is his paycheck, and occasional intimacy, I can safely say I still do not trust many men.

We had a wonderful Christmas! We spent a lot of time doing things together as a family.  Sledding, building snowmen, and being thankful for all our blessings.  My girls and I love to read Christmas books, make cookies for Santa, see temple square, and listen to holiday tunes in our home.  After this year, I can safely say that I enjoy my girls for the little people they are becoming.  I no longer feel I have to do EVERYTHING for them. They are able to help in all the processes of every day activities! I am totally enjoying ages 10 and 7.  We made several gifts and took them to less fortunate.  We wrapped 30 presents and took them to Primary Children's Oncology ward, and we even gathered clothing for men at the downtown Mens Shelter in Salt Lake City.  We cooked and took in Thanksgiving dinner to a man who has full blown AIDS and saw tears in his eyes as he was so grateful for the food and love on that particular day of thanks!!  I hope more than anything I am able to leave my girls with a legacy of service.  "Do unto others as you would have done unto you." "Pray for those who despise you." "Pray for your enemies." "Love thy neighbor as thyself."  I hope they realize that big fancy houses, cars, and money do no make for happiness.  Service, smiles put on those of others, and a burning feeling that comes inside when you bless the life of another human being are what matter most.

This past week has been a little bit of a rough one for us.  One Tuesday I took my mom (my best friend) to a doctor's appointment for her feet.  She has diabetes and has had neuropathy in her legs and feet for years.  She spent some time last year in an assisted living facility after surgery on one of her diabetic ulcers.  She has healed well, and we have felt blessed.  However, this last doctors appointment we learned that she had two ulcers underneath some calises on the bottom of her feet.  He doctor told her that she needed to stay completely off her feet for at least 6 weeks.  This is extremely hard to do when you live alone.  Well we also learned she has infection in those ulcers and it has spread into her blood.  So home health care comes every day and gives medication through a pic line in her arm.  Her spirits are good, and feel confident that if she follows the doctors orders she will be back to herself in no time.  On Wednesday I had a doctors appointment with my OBGYN.  I was diagnosed with the virus HPV (different than HIV) a few years ago, and I knew that the strand of HPV I carried was the strand that can lead to cervical cancer.  This last Wednesday I learned as I looked at an ultrasound that I did in fact have cancer again. This time in my cervix and uterus.  I was shocked and dumbfounded.  You see I have been in for exams every 6 months for the last 2 years and nothing.  The immediate order was a complete hysterectomy.  This procedure should take place within the next couple weeks, and then after the surgery we shall determine the treatment options.  Blood work, ultrasounds, and biopsies have been done.  This Wednesday I will meet with the surgeon and hopefully have a date for a complete hysterectomy.

I am so blessed! I am so blessed to have 2 daughters whom I love more that my own life itself.  They are my jewels and the light of my life.  They make me so happy each day, and they are 2 prizes that I will always continue to fight for.  I hope that those who are in my past will be forgiving.  I know that I have had to become extremely forgiving for wrong doings against me.  I believe that humanity is good, and that there is more good on this earth than bad.  I know that as long as I keep Christ as the center of my home, and first in my life, all will be well.  Til next time......

Chapter 12

Keeping a journal, or in this case, a blog is completely about being honest.  When I was a little girl and I wrote things down in my "diary" I did so with the thought in mind that no one would ever read the secrets that filled the pages of my special book.  I suppose it is a little different with a blog.  The public can read what I type here, and although I am 90% sure that I am comfortable with that fact, I still know that there are some who may read what I write and choose to pass judgement.  To those people I am truly sorry if you feel the need to judge my actions and behavior, but writing is extremely therapeutic for me, so as long I feel the need to voice my opinion in order to help me move on and stay positive I will continue to write for me and my girls.

Going out on a limb here and making a bold statement that has recently come to light in my mind very strongly.  I do not trust men.  I wish that I did.  I wish that I had a better feeling when I was around them.  It's difficult to explain...it really is, but my anxieties rise through the roof something terrible when I am around men.  My Father was a wonderful example to me.  We weren't emotionally close.  He grew up in the depression, and didn't really speak very often, but there was a reverence about him.  At least to me, the youngest, I knew for certain that he loved me and that he always had my best interest at heart.  I have four brothers.  Again, our age span is so great that we didn't really know each other very well.  I have somewhat of a relationship with three of them now.  My one brother lives out of state, and has done since I was 18.  There is such a generation gap between us all that even though I love them dearly I do not feel close to them.  

I felt differently about my husband when I first met him.  He was someone I could talk to.  We could talk together for hours, and it really didn't matter what the subject was.  Just the fact that we talked and got along was wonderful to me.  Looking back now however, I see how this was more like a friendship rather than a romance, but I enjoyed being around him and spending time in his company.  After our marriage and time passed, this trust began to dimmer.  I  no longer felt a sense of "ease" in his presence but my heart would begin to race when I knew it was time for him to come home from work.  When I say it would race, it wasn't in a good way.  I hurried to make the house look perfect, make myself look beautiful, and make sure that from the time he came through the door all my attention was focused on him and "his" day.  

Time has passed and my heart has done a lot of healing as well as forgiving, however I am finding that there is still much I need to forgive.  Not every man wants something "more" than what he expresses, and not every man wishes to use me for something.  However on the few dates that I have been on over the last several years I can't help but sink into a restaurant booth and thinking to myself. "What does this man REALLY want."  Why is he really telling me I'm attractive?  What other motives does he have?  It makes me extremely nervous when a man pays me a compliment.  Especially one about my appearance.  Immediately I begin to wonder what he feels I "owe" him, or what other things does this person have in mind.  I question his job, his integrity, finances, love of children, and above all....I begin to question, "What in the world does this man want from me?"  I have been fooled in the past by a fast talker and I refuse to let those strong brick walls down just to let my heart crumble again.  

Rape is a strong and harsh word.  It's kind of one of those words that you whisper while out in public.  Like if you say it quiet enough it didn't really happen.  I read recently that one in every three women will be raped in their lifetime.  One in every three women will also experience cancer.  Women have some pretty crappy odds.  Being a victim of rape is something that I'm not sure you ever get over.  The flashbacks, the questions, and the alternative scenarios which play out in the heads of victims don't ever really go away.  The only way to deal with rape is to talk about it, however there is shame, remorse, and disbelief that "you really didn't do anything wrong" stays with you.  Many times just after my second daughter was born I can recall waking with a strong headache.  I always assumed it was because I was no getting enough sleep with a new baby.  I believe that I have always been a bit of an early sleeper.  Having two little kids you learn to sleep when they go to be, so many nights I remember being fast asleep by 9 o'clock.  Since my ex would rarely get home before 7 or 8 at night he was always so good to make me a diet coke filled to the brim of the glass with lots of ice.  It was a nightly routine for me.  I loved carrying it in front of the tv and relaxing until I would head up to bed.  However some nights sleep were often more disturbed than others.  I would wake around 4 to feed the baby with the most awful headaches.  Not only did my head pound, but I would find my pajamas strung across the floor of our bedroom.  This wasn't something every night so naturally I assumed that I had gotten hot during the night and taken them off while sleeping.  

This went on for several months.  Again, not every night, but it began to happen often enough that I just started sleeping only in garments.  Even after this began things weren't right.  Clothes weren't on so that I felt dressed completely.  I noticed a few times bruises.  I made excuses that they must have come from the gym.  I did work out, and I did bruise easily.  This is not easy for me to talk about.  As I sit here I even wonder whether or not I want to type.  Sometimes it's easier to stuff memories and feelings back so you don't remember them.  So many things I remember, but it has taken years to get those memories back.  Once they're back I do nothing but wish they'd go away.  

In my first apartment where I lived with my girls they were very young.  Ellie was 4 and Olivia was only 16 months.  It was here where my mind began to piece things together.  Flashbacks began to come so strongly.  Flashbacks when I would look at a certain picture on my bedroom wall.  I woke up so many nights with faces staring at me.  They were faces of men I did not know.  I could hear laughter.  I could hear jokes.  I could feel pressure, and I could see myself there.  The only way I know how to describe these times is this.....I found these words written down in a journal from this time and I think it describes it well.

"Woke up completely drenched in sweat again tonight.  It's 4:06 on the clock and both girls are here in my bed.  My chest is pounding so hard I can hear it in my ears.  I have got to get rid of that candle holder on the wall tomorrow.  It's in my nightmare and the wax keeps dripping off of it in my dreams.  I hear Drew in my dream.  His face is close to mine and he's laughing at me.  My ankles feel like they want to kick but they are tied with something.  It's an awful horrifying dream.  I keep looking at our closet.  I feel eyes watching me, and I scream out to those eyes but nobody comes.  Pretty soon my arms are held down and I'm in pain.  It's a nightmare!!! I know there are people there besides me and Drew, but they stand at the end of my bed and do nothing.  I don't know....I feel sick to my stomach.  These nightmares keep happening over and over."

Only a few weeks after this experience I was able to grasp a firm grip on what had happened to me over several years.  The details of this are still so difficult for me to talk about.  I really am trying to deal with the evil that lies in mankind.  However, there is so much good that also lies in those people on earth.  I try hard to make that my focus and strive to become stronger.  I would much rather laugh than cry, however I am a firm believer that crying is necessary at times.  When I cry into my pillow (which I have done often) I always offer prayer, and I KNOW without a doubt that my Heavenly Father hears those prayers.  I feel arms wrapped around me.  As I continue to work on trusting men in my daily life, I remind myself often that there are wonderful men in my family who are great examples of goodness.  It is something I am working on.  I don't want to spend the rest of my life alone and bitter at every male I meet.  I want and wish to find love again one day.  If I don't here in this life, than I know I will in the next life.  I believe more than ever my Heavenly Father is in control of that area of my life.  I'm honest enough to know that I'm not ready to give my heart away just yet, but perhaps in the future I'll be ready to try again to give it to someone special.

Chapter 11

Well we can't really be human unless we experience ALL emotions.  Not just the good ones.  Today I am a little saddened, and my heart feels a little heavy.  Mostly these deep feelings are nothing more than selfish tangents.  Feelings that only take into play my own thoughts, self happiness, and overall... "but what about what's best for me?" questions.  Many people know that I came into the world as a "little surprise."  Well ok, surprise, accident, fibroid growth...whatever you want to call it.  My mom was 47 when she realized that she wasn't actually going through menopause, but in fact she was four months pregnant with a baby.  A fourteen year age difference between he youngest son and myself.  As a matter of fact her second son, Bob, was graduating BYU with a wife of his own, and a baby on the way!  My niece, who would come to earth three weeks ahead of me, making the oldest grandchild of Bruce and Lynn Passey older than their youngest child.  Only in Utah right??

So fast forward several years until today.  My sweet mother is a ripe age of 82.  I love her wisdom.  I still call her everyday.  She is my sounding board when I need to vent, and my arms of love when I need to cry.  My dad passed away in 2009 just 7 months after I separated, and 6 months before I was diagnosed HIV positive.  I am absolutely convinced that the Lord took him home when he needed to.  His passing was sudden, but he went quickly and didn't suffer.  Events such as death of a parent are extremely surreal.  To me it's like I was outside my own body.  I could see myself at the hospital, sitting by my father at his bedside, and even holding his hand; however, it doesn't seem as though things are really happening.  It seems as though it's an awful dream.  A nightmare, in fact, where I will wake up any second and realize that my dad has not died.  He is still as strong as ever.  One minute you're talking about cancer treatment, then death, then the funeral, obituary, etc.  It seems like time passes but at the same time it's standing still.  One minute I'm talking to my dad as he's helping me shovel my driveway, then the next I'm holding his hand as the ventilator stops.  I understand that death is natural, necessary, and even at times the best thing, but what about us left behind??  My mom is in basically good health.  Today I saw her extremely tired however, and it struck me.  She had been wrapping all her families Christmas presents.  She was so tired.  As I listened to her explain that her fingers didn't move as they used to, her arms were tired from wrapping and lifting gifts, and her vocal worries about whether or not her family really even cared whether or not she gave them presents I became overcome.  This woman, my "other", seemed exhausted.  For several moments I wondered if her grandchildren, children, and great grand children really knew how much she was concerned for their happiness at Christmas?  She really thinks about each and every person in her family, and she wants nothing more than the best present for each member.  I saw what it does to her physically, mentally, and emotionally, and for several minutes I thought, "is this worth it?"  I realized for the first time today I didn't know exactly how much time I would have my sweet mommy.  Yes, she is in basically good health.  Her heart is strong, her lungs are strong, and her mind is still there.  For these things I count my blessings, but she looked so tired today.  I have seen that kind of tired before.  In fact, I will go as far as to say I have been that tired before, and it's a scary thing.

I am feeling selfish tonight, and if I can be honest a little angry.  I miss having a partner.  My mom is a wonderful person.  She really is.  She is my best friend, and without a doubt the person I go to whenever I have news to share.  Good news, bad, exciting, or sad.  She is the first phone call I make to talk about my day.  Being 14 years apart from my next sibling I do not have close relationships with my  brothers or my sister.  I cannot call them and vent to them about my day.  Mainly because they have their own kids (who are my own generation) and they are the sounding boards for their own children. we just seem to have nothing in common.  Our interests are different.  There is a generation gap between my siblings and I, and although I love them dearly there will always be this bridge between us that is just difficult to cross.  My siblings, many of them, have a spouse that is their sounding board.  That person is their "other."  You know, the one you go to when you've had a bad day, or maybe it's a good day.  Someone to share inside jokes with.  Someone to rant and rave at.  Someone that will just listen when you need to cry.  For me, at least the last several years has been my mother.  I worry about when she is gone.  I hope that loneliness will not overcome me.  For I do not have someone to talk to at night.  I don't have that partner to help me with dinner, homework, baths, or all other duties that a family has.  To be quite frank....I do not want a man around right now.  I can think of a couple reasons why I would like to be married, but none of those reasons are healthy so for now I guess I continue on single.  I miss the help with the family, but I have been so scorned that I don't feel that my trust radar is anywhere near on target yet.  That will take some serious time.  Time that I can't put a limit on.

I often worry about how much I take for granted.  Time is number one on my list of things most precious.  Don't ever take time for granted.  Don't put off until tomorrow what can be done today.  I would like to add to that saying.  Don't put off until tomorrow what can be done or said today.  Tell those around you how much you love them.  Make sure they know it.  Make sure that you hug longer and more often.  Don't be ashamed or worried that you might look like a fool by expressing your feelings out loud or to someone you love.  Time is not something to take for granted.  In a moment things can be different.  People you love can be gone and it will be too late to say what you need to say.  Forgive!!!! For goodness sake....are you perfect????  If we were perfect, at least in my opinion, we would not be on this earth anymore.  We would be taken back up to heaven to live with our Savior.  So, when someone wrongs you, hurts you, makes you sad, angry, or upset....no matter how hard it is.... try to work on a way to forgive them and move on.  If you have not walked in someone else's shoes are you truly able to pass judgement on them??  Be a peacemaker, and say "I'm sorry" much more often than you already do.  Don't worry about things that are out of your control.  Control the things that you can change.  Yes, I will be the first to admit that I am a bit selfish in saying that I wish I had a mother who was 52 instead of 82.  I wish my dad were still alive.  I wish my siblings were closer in my age; that we could raise our children together instead of a generation apart.  I wish my nieces and nephews lived closer.  I wish, I wish, I wish.......but my mother knows how much I love her.  I've told her.  I tell her often.  My dad knew before he died that I was grateful to him for life.  I was thankful he showed me how to pay it forward and press on even in hard times.  I am thankful for forgiveness.  Both given to me and forgiveness I have given.  I tell my friend often that I love them.  That I am thankful for them in my life.  I hope that I never put off something I can say today.  I love you mom!

Chapter 10

Today I was able to spend some alone time in the mountains with my journal.  It was an exceptionally nice November day, and the colors of Fall were everywhere.  Although I don't like the cold at all, there was something exciting at seeing the skiffs of snow on the tops of the mountains in Park City and Deere Valley.  I love the mountains with all my heart!  I think I've had more tears of overwhelming joy drip down my cheeks while hiking and spending time in the mountains than I can count.  There is something that stirs up inside of me whenever I wander through the woods that makes me feel "at home."  I feel love, joy, peace, and an overwhelming sense of happiness in nature that literally makes me cry at times.  So today I was happy to have a few hours to write my thoughts and feelings down in my journal with my diet coke and bask in the warmth I felt inside and out.

As I wrote my feelings down I paused several times and thought about certain struggles in my life at this time.  I said some prayers to my Heavenly Father, and I poured out my heart and soul on paper and in words.  

When I first divorced I was relieved to be alone.  The nightmares that I had been having while married were still going on even after I was divorced, but they continued in a different way. They weren't as up close and "in my face."  I no longer was in the same house, and I didn't have to tip toe around walking on eggshells with the looming elephant in the room, so I did have moments of calmness and peace, however my mind always seemed to be anywhere but in a calm place.  When I say nightmares I don't mean literally; just figuratively speaking.  I found it very difficult however to be alone when my kids were with their dad.  I was uncomfortable in my own skin.  Not having them meant that I could relax, however it also meant that my mind was free to wander.  Daily routines with children are able to help keep your mind busy, however it can also be a catch 22 because my anxiety levels seemed to shoot through the roof when my girls were home.  Feeling like I needed to meditate on what to do next in my crumbling marriage, but having two noisy little ones distracting that concentration proved to be more than I could handle at times.  However, when your kids are gone with their father for the weekend, it's like a limb is missing.  The only way I can describe it is that you feel like you want your kids gone so you can think and figure out "life", but then when they're gone all you do is think, and think, and think, and think, and think whether good or bad, and too much thinking when your life is upside down can be a very bad thing.  Too much pondering on the negative, especially alone, only leads to despair, depression, and dark thoughts.

This tee-tor totter relationship with myself went back and forth for a long time.  Coming home to an empty house is almost as lonely at times as living with someone who doesn't want anything to do with you.  It took me a long while to be "ok" with myself alone.  Feeling as though I was enough too time.  It took a small eternity to be alone in my house without any distractions.  For a long time the tv had to be on all the time to keep me company.  If it wasn't the tv then it was the radio, but as time went on I found that meditation, in a healthy form, can be healing and peaceful.  I began to hike or go for walks.  Taking time to breath the fresh air in and out.  Running or jogging without music became a task that I would try.  (Not too often because I need a beat to run too :) I would listen to the constant pattern of my breathing and let my thoughts wander.  My biggest help became journaling.  Write it down, get it out, and move on.  The last couple of years especially I have become quite comfortable with myself as far as being alone goes.  In fact I look forward to alone time.  When my kids go to bed I enjoy tv, reading, or other tasks that I am able to do.  Life can be so crazy and busy, but there is great comfort in knowing that God is in charge of my life.  "Be Still, and Know that I Am God."

Don't get me completely wrong.  I do still get lonely at times.  Lonely for a partner.  Someone to bounce ideas off of, laugh with, love, and someone to share my heart with.  Many tears have come wishing for someone to hold, share inside jokes with, or just plain "be there" with me.  However, I have put that part of my life completely in God's hands.  If it's meant to be then it will happen.  If it's not meant to happen, then I'm ok with that because I still know that my Heavenly Father loves me and the promises that will be mine one day.

I believe that when you climb a mountain you do so with a purpose.  Maybe the purpose is to exercise, see a beautiful view, spend time with friends, or just enjoy the journey.  However every time I climb a mountain I leave a piece of myself at the top.  Maybe it's a frustration, unkind feelings towards someone, or maybe someone has offended me.  When I am ready I look out over the view, take a moment, and leave whatever is bothering me at the time up on that mountain.  Then make a promise to come back down with a new attitude, rejuvenation of life, and a positive outlook.  For three years I have worn a yellow "Livestrong" cancer bracelet on my right arm as a reminder of my battle.  I would look at it often and remember the hardships that once were.  A reminder of daily medication, loss of hair, and illness.  I recently went to Mexico on a yoga retreat, and spent time by the ocean reflecting on my past as well as the future to come.  While there I took my yellow bracelet and threw it into the ocean to be carried out to sea.  I felt as though it was time to let that reminder go.  No more concentration devoted to illness, hair loss, and awful medication.  I will ponder on things from time to time about that season in life, but I felt it was time to remove the constant daily reminder.  This sounds so silly; I admit that, but for me it was a giant step forward.  "Moving forward is much better than going back.  Especially if you've experienced what it took to get you where you are today."

Chapter 9

I have discovered as I get older that I have been able to block a lot of memories from my mind.  Now, I'm not exactly sure if this is because perhaps my subconscious doesn't want to remember certain things, or if I have taken so much medication that I have permanently become lodged in a state of brain fog.  In many ways this has become a blessing in my life, however I learned the hard way that "stuffing" feelings down deep inside doesn't make them go away.  It only makes for some awful flashbacks that are crippling.  Diagnosed in 2010 with HIV I did not tell my family right away.  I did not tell my best friend until almost a year later.  I was ashamed, I was humiliated, and most of all I was in denial.  I felt completely fine, and somehow or other I was determined that this awful disease wouldn't really affect a woman like me.  Someone who had tried her hardest to do what's right all her life.  With the exception of being a complete "handful" to my mother as a teen I had lived my life how I had been taught.  I believed in God, I had great faith, served a mission, and married in the temple.  I was a mother, and I enjoyed my babies.  If I didn't talk about the disease then it didn't really exist.  I didn't look any different.  I was the same person as I was before being diagnosed.  I was the same friend, daughter, mother, and Sara as I had always been.  Except that I was sick.

My physician had told me at my diagnosis that eventually my spleen may need to come out.  The spleen is an organ that cleans your blood and helps produce antibodies to help the immune system.  He also told me that my risk for cancer jumped to 80%.  That if untreated, without medication the HIV virus would prove fatal.  Going through a divorce and having 2 small babies I just didn't put these facts first in my life.  Instead I chose to stuff these things down deep inside.  I stuffed them so deep in fact that I pretended that nothing was really wrong.  Until I couldn't deny things any longer.  In the spring of 2011 I was running a Ragnar race called the Wasatch Back.  It was in Midway Utah that I was in the middle of my final run for my team.  A 7 mile stretch.  Around mile 4 my stomach began cramping so badly that I had to stop several times and walk.  By the 5th mile I was in tears.  My stomach hurt so badly that I was on my knees on the side of the road.  A fellow team member took over my spot and finished my run.  At the time I was more disappointed in myself for allowing my body to beat my mental self as a runner.  In pain and frustrated I got in the van and watched as a teammate finished my 2 miles.  I remember after this particular leg going into a restroom at a gas station and I was horrified that I was passing a lot of blood.  

A few days later I was back at my physician who ran tests.  The news which I received was not good.  HIV related non-hodgkins lymphoma.  This lymphoma is a slow growing B cell lymphoma which is terminal in the body.  It does not go away.  Because there is no cure for the HIV virus there is no beating this cancer.  It is very manageable.  However the radiation and chemo medication would take a severe toll on my immune system dropping my t-cell counts dangerously low.  For almost a year I wondered just how long I would be here on earth.  I thought about my children.  There were months when they did not live with me.  Thanks to my wonderful brother and sister in law my babies were able to have a stable environment to be in.  

http://www.cancer.gov/cancertopics/factsheet/Risk/hiv-infection

In the next few months I became very ill.  This time in my life is still very difficult to talk about for me.  I have contemplated why that's so?  For some reason I feel as though if I don't talk then the problem doesn't really exist, or that somehow I will wake up from an awful nightmare and be well again.  I of course had much news to share with my family.  It was time to start talking.  I had been going to therapy for almost a year at this point, and I had talked at length with my therapist about many issues beginning from marriage.  My therapist knew about my disease long before my family members did.  It was just easier in so many ways for me to talk to a complete stranger than my own mother.  Radiation was so hard on my immune system.  My t-cell counts dropped so incredibly low.  By sheer faith of those around me, and my desperate prayers I made it through this awful time.  

I am leaving out so much of this time of my life, but I don't want to focus on the negative.  I believe that the mind is the strongest muscle we have, and when your mind is in the right place; the absolute right place, everything else will fall in line.  I have become beyond grateful for each day.  For time to be able to go outside and be in nature.  Many things are not so important anymore, and I really do take time to make memories with my children.  I need to know for myself that I have engraved lasting memories of positive times in their little minds.  I want so badly for them to know that their mommy loves them.  They are my two lotus flowers that have blossomed into beautiful flowers despite all the mud and dirt they have pushed through early on in life.  That's how a lotus blooms you know.  It starts way down in the mud and over time it's fervent efforts to make it up to the sunlight at the top of the water keeps its spirit alive.  It has to go through all the ugly to get to the beauty, and once that flower reaches the tops of the water; oh how gorgeous it is.  

I do not know my exact lifespan.  I hope it's a long while to come.  I do know that I want to fill each day with gratitude and love for everything around me.  I hug more; even strangers.  I don't stress so much about the future.  The Lord is in charge of that.  I pull my kids into my bed in the middle of the night instead of putting them back in their room.  I look people in the eye more and genuinely say "Thank You."  I take deep breaths, laugh, love, and remember that everyday I'm here is a blessing.  I hope that my kids will be proud of me.  I hope that I make some footprint here, and that I always remember to Pay it Forward what has been done for me.  

Chapter 8

Well we are three weeks into the new school year and I am finding it a little difficult at times to get used to this new chapter in my life.  Having both girls in school the whole day I have begun to deeply think about this new phase in my life.  Not having my little sidekick next to me everyday gets kind of lonely sometimes, but when she comes home and tells me all about her day I realize that Olivia is happy at school and enjoys all her new friends.  She has enjoyed having some little boys throw away her lunch, follow her around the playground, and helped her carry her backpack.  (Oh dear, heaven help us in the future!) She loves all the girls in her class, and both my girls really like their new teachers.  Ellie too, is happy and enjoys being with her friends.  If I let my mind wander too far.....junior high is in 2 years; just around the corner, and I AM NOT ready for that!! Ellie has always been an excellent student.  She loves learning and has never really minded homework.  She loves math.  Which the only fear I have when she has math homework is hearing her yell from the kitchen, "Mom, I don't get this problem." I feel like I want to hide when I hear those words, which really isn't very often because she rarely has an issue.

I've thought about how fast time goes by, and how their little lives are becoming more and more enriched with experiences in this world.  I pray and even often tell each girl that despite the bad in life, there is SO MUCH good.  I've felt pressed to keep their attention focused on the good in those who are in their lives.  You know it's sad in a way because every year that kids get older a little bit of their innocence is lost.  I've thought about what might be their ambitions and aspirations for the future.  I hope that each of my girls grows up to be a loving, kind, caring, and understanding person.  I hope they feel free to be themselves and express themselves in a positive way.  Be patient with people around them.  I think we all learn this lesson in life.  Some people I am more patient with than others.  I admit that....:)

Earlier this year I wrote a poem that I will one day read to my girls.  My Mom had it framed for my birthday, and it sits in my room.  I have learned that most important things in this world aren't "things." More importantly are those we have in our lives.  If you really want someone in your life, you make sure they stay there.  Relationships with those around us will come and go, but hopefully we will take a piece of each one with us through life's journey.  Love you girls!!!

I do not own a fancy house,

Or drive the latest car.

My bank account is nothing big,

I do not travel very far.

To dress myself in stunning jewels,

Is nothing I can afford.

I made a list of all my assets,

And it seems I'm rather poor.

With me there is no secret stash,

What you see is what you get.

No pot of gold at my rainbow,

But I haven't given hope up yet.

When it comes to my material things,

My net worth is kind of low.

My wishlist of what I want,

Doesn't match my actual cash flow.

But my life is good and my smile is big

I have more riches than I can say;

I have the love of my sweet girls

Their happiness beats any payday!

Within the walls of our small home,

Love and laughter abide within.

For all the money in the world,

I would not trade this gift in.

All the diamonds a girl could want,

Cannot be found in my jewelry box.

But instead; trinkets, notes and drawings

Lost first teeth and hair locks.

My car is old and may have some dents,

But it gets me where I need to be.

Ball games, lessons, and tumbling class

Play practice, PTA, or anywhere else my girls need me.

And one day before I know,

I'll be buried down in the ground.

It is my prayer that my girls looks back,

And say, “We're sure glad Mom was around.”

We did not have a great big house,

Or ride in a fancy car.

But we sure made some memories,

That will outlast dollar bills by far.

I pray they learn from their young age,

That happiness cannot be bought.

That when they are discouraged,

Feeling down, saddened, and distraught

They take a look around them,

And be happy with what they've got!!

Chapter 7

Well since I am in the mood to "rant and raive" a bit I figured why not do so on my blog??  I thought I would take just a moment and educate some of my friends about the way the government works for folks like me....you know the ones who are on state assistance.  Remarks about Welfare on Facebook are all too familiar and personal to me.  Yes, it's a little bit of a sting each time I read somebody re-posting something about how they are paying MY food, medical, and housing bills each month.  Although a portion of this IS true I am not however wasting the tax payers money on booze, cigarettes, and gambling. As if I'm some lazy piece of junk that just wants to take the government, hard working tax payers, for everything they've got.  Believe me I never wanted to be on public assistance.  It wasn't a "goal" I set out for, and to this day it puts a very distinct and BITTER taste in my mouth when I think about it.  But YES! many of you are paying my food bill each month.  More of you are paying my doctor bills, prescription refills, and my rent each month!  More of you are paying for my heat in the wintertime.  This is NOT  fact I'm proud of, and to be frank I'm sorry if this kind of help for me angers you, but I urge each of my friends to remember the situation my children and I have been put in is not one of choice.  I NEVER said, "I think I'll just mooch off the system for awhile."

I remember the FIRST time I walked into Work Force Services in Clearfield.  I was standing in a building completely strange to me.  I didn't even know this place existed.  I was overcome with tears, and I still to this day remember them flowing freely as I asked the man behind the customer service desk what I needed to do to apply for government "help."  He directed me to some pamphlets, booklets, and other necessary paperwork to fill out.  I had heard of Food Stamps.  In fact, when I was a checker at grocery store during college I knew that they bought certain grocery items.  I knew they were different than WIC, but that I had to count out the money for the Food Stamps to make sure the person using them had enough to purchase their groceries.  My first encounter with these was when I was a checker and I actually had to tell a woman that she didn't have enough stamps to cover her bill.  I remember feeling so awful for this woman, and I felt even more awful having to tell her that her stamps didn't cover her bill.  She left all the groceries at my register for the bag boy to put back because she just couldn't use her cash to pay for things.  She simply DIDN'T have the money.  When I went into Clearfield I obtained the necessary papers to apply for this same program.  I was working at Corbin's Grille at the time, and I knew that I just didn't make enough money to pay for everything that my young children and I needed.  My job was completely secondary.  In my understanding while I was married...."your job is our PLAY money."  I didn't HAVE to work while I was married, but for my own sanity I needed too.  My husband never liked it when I worked.  I could always tell that.  It meant he was tied down with the children, but at the same time, I never really ASKED permission.  I just needed that time out to be a better mother, wife, and not to mention...have some adult conversation.

When I applied I had to fill out my whole life story on paper, then be interviewed over the phone and answer every question about my background.  The first go around I was COMPLETELY honest.  I told how my dad would help me if I couldn't make the rent on my new apartment.  I was forthcoming about I worked part time, and that at the moment I was still on my husbands health insurance for the next three months, or at least until our divorce was final.  The government was completely relentless at squeezing every detail out of me.  What were my assets?  Did I have a car, property, trust fund, insurance, or bank accounts in my name?  If so....how much did they total?  What were they worth?  Who was the beneficiary?  It wasn't until late that I learned just how LITTLE if nothing I could really have in my name.  Almost nothing can be claimed to be MINE.  For my honesty I was denied.  Then I was denied again.  The third go around and many months later, still not supporting myself, I filled out the assistance papers.  This time I had closed all bank accounts, insurance benefits were no longer in my name, I had not property, my car was not in my name, and I had signed off that I had NOTHING!  I was finally approved for assistance.  I felt relieved however, at the same time heartbroken.  My dad grew up in the depression.  Nothing was ever handed to him.  He worked for everything he had.  The man wouldn't buy a car unless he had the money to own it outright.  He wrote a check for a house, and then sold his old one.  The same year I got assistance my dad passed.  I kept hearing his voice in my head.  Like I needed to work harder, do more, I just felt that I had let him down by being on Food Stamps or Medicaid.  It was awful.  It IS awful feeling like you are NOTHING! That you can't support yourself.  Our system is so completely screwed up!!  If I work full time, as per my doctor, I will be sick and flat in bed in a matter of months.  However full time work is the only way I will qualify for insurance benefits.  My one medication a month....an Antiretroviral called Atripla is $2300 a month without insurance.  Thanks to Governor Herbert this medication has been uncovered anyhow since last October.  Thank goodness as of September 15, 2014 Medicaid will again cover this medication and I will no longer pay out of pocket in order to stay on my necessary life sentenced medication.  If I went to work part time (WHICH I TOTALLY FEEL I COULD DO) I would not have any health insurance, and surely could not afford my monthly medical bills.  I have already had to declare medical bankruptcy because medical bills, hospital stays, treatments, and medications. So the message to me is that I can sit and do NOTHING and get benefits through Social Security, or I work part time and have zero medical coverage.  Third option....I take the chance and work full time with the hopes I won't get sick.  The chances of that is extremely slim.  Not only will I most likely burn out, but my children are too young to get themselves here and there.  Ready for school, homework, extra activities etc. BUT the biggest...how long will any given company put up with my medical bills on their company's insurance before they let me go.  Sure Obama has said that you can no longer discriminate, but I don't put my trust in Obama.....BIG SHOCKER!!  It will only take a matter of months before any company gives me some sorry excuse about how they have to let me go because my position is no longer needed in their company, while really the reason behind my dismissal is that of high premiums on the company's medical program.

Soooo although it is NOTHING I'm proud of, I have learned that for now I have to accept the governments help for my family.  Belief me my self esteem has felt every blow that is ever joked about on Facebook about Welfare and assistance.  Not everyone who is on government help is a drug addict, in prison, or an alcoholic.  There are people like me who have been handed a messed up situation, and we have to deal with it.  Swallow big gulps of pride and accept the help.  I can't really say what the future brings, but as for now, this is where my life is and I have to be ok with that.  However, just because I am ok with it for now, doesn't mean that I am comfortable in my own shoes.  My self worth has taken a huge blow.  Self esteem knows in which company the majority of society holds me in, and I am reminded of that each month when the food stamp balance is put on my monthly card.  Just because I am on government help doesn't mean I want to be.  Just because I don't work part time doesn't mean I'm lazy, and just because I pretend to be fine with the way things are doesn't mean I am.